June 2022 Newsletter

Tips to Beat the Heat!

Summer officially begins on June 21, and while many are looking forward to fun in the sun, this season may be meeting MSers with dread. An estimated 60-80% of people living with MS experience heat sensitivity — but not to fret! We Are ILL has five tips to help you beat the heat.

It gets better! Our friends at ReLeafPack — long-lasting ice packs that make “cold therapy a magical experience” — have generously offered an exclusive discount for our community! Use “WAI20” at checkout for 20% off your ReLeafPack.

Upcoming Events

June 14

Living with MS as a Black Person - Participating in Clinical Trials: Your Opportunity to Make a Difference

On Tuesday, June 14, Victoria will lend her voice to the free digital educational program, “Living with MS as a Black Person - Participating in Clinical Trials: Your Opportunity to Make a Difference,” presented by the MS Association of America. Joined by Dr. Jacqueline F. Rosenthal, Victoria will discuss the importance of diversity in research participation and discuss the role research plays in providing evidence for treatment and quality of life decisions. This live webinar will take place from 8-9 p.m. EDT.

June 15-16

National MS Society: Black MS Experience Summit

June 23

MS Association of America: Understanding Your MRI Webinar

Did you know that June is African-American Music Appreciation Month?

We went ahead and got the party started for you.

Head to Spotify to check out our “Summertime Fly” playlist, full of jams old and new to get you in a summery mood!

Listen Here!

Victoria on the Move

Victoria Reese, our Co-Founder and CEO, was recently featured at two events for the Consortium of Multiple Sclerosis Centers’ (CMSC) Annual Meeting, held from June 1-4. Needless to say, Victoria brought her Black girl magic and boss babe vibes to CMSC — the leading research and educational conference for MS healthcare professionals in North America.

During the “Delivering Patient-Centered, Equitable Multiple Sclerosis Care: The Latest Evidence and Real-World Perspectives” panel, Victoria shared her real-world insights on MS care and equity alongside her favorite neurologist, Dr. Mitzi Joi Williams (pictured second from left). Proving she inspires people in every room she graces, Victoria even received a standing ovation for her powerful speech about her journey with MS the following day. We love to see it!